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Dissapointment
Nov. 18th, 2008 11:35 pmSo for those who don't read ![[livejournal.com profile]](https://www.dreamwidth.org/img/external/lj-userinfo.gif)
purplegirl23's LJ, today she was taken off the light treatment after 19 doses (out of the intended 30ish), because it wasn't really working. While it had made some difference, it didn't make the level of difference it should if it was working, and her skin was starting to get worse. She's been ordered by the doctors to take a week off, while her skin is treated daily at the hospital and recovers from an infection that's taken hold.
It's been a real disappointment, I had hoped she'd been in the 50% who the light treatment makes better. The next options are drugs with some nasty potential side affects, and that require some regular checks to monitor.
In some ways I thinkpurplegirl23's taken it better than I have.
Still I'll do what ever needs to be done to make and keep her well. I'm just glad I'm so good at calming her and soothing her. It means I can actually make a difference when she's suffering, just wish I could stop the suffering from occurring in the first place.
purplegirl23's LJ, today she was taken off the light treatment after 19 doses (out of the intended 30ish), because it wasn't really working. While it had made some difference, it didn't make the level of difference it should if it was working, and her skin was starting to get worse. She's been ordered by the doctors to take a week off, while her skin is treated daily at the hospital and recovers from an infection that's taken hold.It's been a real disappointment, I had hoped she'd been in the 50% who the light treatment makes better. The next options are drugs with some nasty potential side affects, and that require some regular checks to monitor.
In some ways I think
purplegirl23's taken it better than I have.Still I'll do what ever needs to be done to make and keep her well. I'm just glad I'm so good at calming her and soothing her. It means I can actually make a difference when she's suffering, just wish I could stop the suffering from occurring in the first place.
